Another Journey Update…

Sorry I have not posted in a while, but I have been trying to figure out how to word things.  Then I thought, that’s stupid, why don’t I do what I always do, just say it like it is.

Well, Sandi and I spent the day together on Tuesday.  It was nice spending time with her, but it was at doctor appointments.  Spending any time with Sandi is great, even if it is at doctor appointments.

The day started with my radiation therapy.  She came back to the room and saw the exam being performed.  Radiation therapy is going well.  I have three more sessions (I will be done next Wednesday).  The pain from the mass is getting better, but not sure if it due to the doctors increasing my pain meds or if the radiation therapy is doing its job.  I have not felt any decrease in the size of the mass, but that may not happen until after therapy is done. 

We then went to see my oncologist.  He was very happy with my weight gain.  Up to 177 pounds now.  I have gained 45 pounds since the beginning of August.  We discussed starting me on a new drug (think Huey Lewis, “I Want a New Drug”).  The drug is Vectibix and we will see what it can do for me.  I will be on it for about two months and then we will do a CT scan to see if this new drug has made any difference.

The it was off to lunch.  We met up with our niece, Kristen, for lunch at Bravo.  We had a nice lunch and visit with Kristen. 

Next stop, the surgeon.  I really like my surgeon, but he can be very direct.  I like people that are direct, you know where you stand with them, but it can be painful sometimes.  He told us that he would do more harm than good if he performed surgery right now.  We did look at my latest CT scan and it looked pretty ugly.  My entire abdomen is just full of cancer.  He pointed out some of the tumors as well.  He seemed a little puzzled about next steps and noted that he is not giving up on me yet.  Yes, very comforting words.  One good thing is that he is also happy with my weight gain and so we are going to get me off of the TPN treatments.  Sunday night will be my last treatment.  We will then see if I can self-sustain my own weight.  It is also nice to get off TPN as Sandi and I would like to take a trip for our anniversary and we were not going to be able to do that if I was still getting TPN treatments.

Anyway, the nutshell is that radiation therapy is going well and will be ending soon.  Getting off TPN.  Chemo will be starting in about a week and a half.  That’s the update.  Thanks for reading!!


Back to the grind…

Well, it is back to the grind, again.  Had a CT scan last week.  Results showed continued growth.  There are a few tumors that have grown from about an inch to an inch and a half.  There continues to be mild growth in the abdomen.  Gettin’ tired of these CT scan results. 

Started chemo again on Friday.  It hit me hard for the first five hours or so. Harder than I remember in the past, but got through it.  Will be having chemo treatments every two weeks, starting on Sept. 16th.  My oncologist is putting me back on Erbitux again.  This is the drug that gave me the very bad chemo rash.  Great.  My face gets to look like it went through a meat grinder again.

Met with my surgeon today.  At least a minimum of six more weeks on TPN.  Guess I better get used to this, even though I don’t like it.  He still wants me to gain more weight.  I have gained aoubt 20 lbs. in the last three and a half weeks.  He is happy with that, for sure.

Anyway, here we go again.  Will probably get another CT scan in about 2 months to check porgress.  I will continue to keep you all posted.

CT Results – Good but confused…

The results are in and the Idol contestant leaving us tonight is…oops…too much American Idol, I guess!!

Here is the short of it. The report as I read it is about 95% positive! PTL!! Everything seems stable at this time. There is more growth in the nodule that showed up last time. It went from 9 mm to 1.3 cm. They also noted some things along the right (ascending) colon. We will ask questions about that. The confusing part is that they noted increased thickening around the omentum. Well, I had my omentum removed and I got confused. Then I remembered that you have a greater omentum and a lesser omentum. So, back to dig out my surgical reports to see if my lesser omentum was removed.

Anyway, seems like good news to me!!! YES!!!! We will get the official word from the oncologist on Tuesday, but from my reading, I think we are doing good!

Again, thanks for all of the prayers and support. Sandi and I cannot do this on our own and we thank you for the help!!


The results are in…

And I am beginning to get REALLY MIFFED at this stupid disease. The results were not what we were expecting. The cancer that was left after surgery continues to grow. The also found some possible issue with the bladder. They think it just might be some “debris” or blood. No mention of cancer in the bladder, however. The also found a small mass in the small bowel that was not there three months ago. I also have some “tiny” pulmonary nodules that continue to remain unchanged, but they are still watching them.

SO, after having a short weak moment of tears and anger today, I am back on the straight and narrow path of optimism. We meet with my oncologist Tuesday for my next round of chemo. I am SURE that we will discuss treatment plans. We then meet with my surgeon in early April. I am sure that he will want to schedule another surgery. Although I would prefer not to have another surgery, this seems to be the only way I can rid myself of this cancer. Chemo just doesn’t seem to be doing the trick for me.

Again, I thank ALL of you for ALL of your support. My prayer is that one day I can post that I am cancer free. Until then…


Big day today…

So I am sitting in the waiting room right now. Posting from my Treo phone and I hope it works.

I am drinking my wonderful fruit punch contrast solution. Nasty stuff. Anyway, I am getting ready for my CT scan. This scan is key for decision making over the next few weeks.

I will update you all when I get my results, probably tomorrow. Thanks for your support!

Refusing to lose!!