Update and Thank You

I just wanted to give a quick update to let everyone know where things are.  Stef is still holding his own.  He continues to amaze me.  What an amazing will he is showing.  Our hospice staff has been phenomenal.  They have dropped in every day except for Saturday to check on Stef as well as [...]

First Days at Home

Just a quick post because I know so many of you are wondering how things are going now that we are home.  We got home yesterday shortly after 2pm.  Hospice arrived at our home around 1130am to start getting everything organized for Stefan’s arrival.  They didn’t leave our home until 8pm.  It was a very [...]

Heading Home

Well…… after 6 weeks and 6 days, we’re heading home.  Stef has really wanted to make it home and once again insurance has gotten in the way; so, after talking with Dr. Martin’s nurse, Shelly, for quite some time, meeting with a social worker, and meeting a different hospice team, we have made the decision [...]

Staying Here

Sorry, that I have not posted in quite some time.  We have had some ups and downs for the past two weeks.  The past few days, our insurance company has really been trying to move us out of here, so that has been incredibly stressful.  But thanks to some good friends and people here at [...]

Much To Be Thankful For…

I know I said it might be awhile until I posted again, but I wanted to give a quick little update.  Stefan has been much more alert the last couple of days.  It has been so nice to sit and visit with him even briefly.  The kids have also enjoyed being able to talk with [...]

Update

I just wanted to give everyone an update for right now.  I know everyone who reads this blog has been praying for Stefan and our family and has shown such amazing care and concern.  On Thursday, Dr. Martin and his team of nurses and I met to discuss Stefan’s condition.  We decided then that we [...]

Staying Put

Well, we are staying here at The James.  After meeting with Dr. Martin yesterday morning, we have made the decision to stay here.  He felt most comfortable keeping him here instead of transitioning to our home.  Stef had a bad night on Tuesday night. He had some trouble breathing and felt as though the room [...]

Figuring It All Out

Well, we are still here at The James.  I’m not sure how much longer we will be here as they seem to be trying to transition us to home.  We were originally thinking about transitioning to Kobacker House here in Columbus.  It is an inpatient hospice facility.  Our original plan was to go there for [...]

PEG Tube is in!!

Well, I wanted to update everyone.  They were able to place a PEG Tube this morning.  Between our surgeon and his fellow, it took only about 1 hour.  This was such good news.  By doing this, it was much less invasive.  He is in some pain back in the room right now, but he also [...]

The Latest

Hi, it’s Sandi again.  Well, we are still at the James.  I think I’m going to quit posting when we might get to go home as that keeps changing.  This Thursday, it will be 3 weeks that we have been here.  I am definitely ready to be home.  However, I don’t want Stef to go home [...]